- 25th - 26th February 2026
- Hilton London Kensington, London, UK
8th Patient Centricity & Collaboration World Congress 2026 Europe
A strategic approach prioritising the patient's needs, preferences, and values from drug development to treatment and beyond.
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Co-located with the 2nd DECENTRALIZED & HYBRID CLINICAL TRIALS World Congress 2026 Europe
Patient meets Innovation & Collaboration
Patient empowerment and understanding to inspire and create a meaningful impact.
We are delighted to invite you to the 8th Patient Centricity and Collaboration World Congress 2026Europe, hosted by Facilitate Live. This two-day Congress aims to foster meaningful collaborations among industry professionals, advocacy groups, clinicians, researchers, and, most importantly, strategies and best practices for addressing challenges, embracing innovations, utilising new technologies, and implementing concepts that contribute to achieving patient-centric goals.
The congress theme, “A strategic approach prioritising the patient’s needs, preferences, and values from drug development to treatment and beyond,” underscores the critical importance of patient centricity and engagement in biopharmaceutical research and development, disease management, and the design of treatments, clinical trials, and other health solutions. True patient-centric solutions necessitate a collaborative endeavor with patients and their caregivers, involving their feedback and insights into medical conditions, experiences, needs, perspectives, and priorities.
Patient centricity necessitates a departure from traditional approaches, embracing diverse, patient centered perspectives. This involves several key aspects, beginning with patient-centric clinical trials and drug development, integrating patient insights into the design, evaluation, and manufacturing of therapeutic products. It also entails actively engaging patients in discussions and decisions concerning healthcare products and services. Patient centricity further emphasizes personalized care, tailoring treatments, communications, and support to individual patient needs.
This is complemented by improved communication, fostering clear, transparent, and accessible interactions between healthcare professionals and patients. Ultimately, patient centricity extends to prioritizing patient well-being, acknowledging emotional, social, and financial considerations alongside medical conditions.
While technology-driven advancements present challenges, they also create opportunities to enhance the patient experience by coordinating the health ecosystem around the patient. This requires reevaluating drug development and delivery to improve experiences and outcomes, and continuously adapting to meet the evolving needs of patients.
The industry has made significant progress in adopting a patient-centered approach, transforming the concept from a mere buzzword to a tangible goal. However, with the evolving healthcare model and ecosystem, driven by technological advancements and more engaged patients, achieving true
patient-centricity remains an ongoing quest and a steadfast commitment.
We look forward to meeting you at the Congress!
Sincerely yours,
Jocelyn Raguindin
Conference Director
Paradigm Global Events / Facilitate Live
GAIN LATEST INSIGHTS ON:
- Critical topics regarding patient centricity within the pharmaceutical and life sciences industry.
- Why it's imperative for our industry to fully embrace the patient-centric movement?
- We will delve into several key areas that are vital for its successful implementation.
- We will be exploring what patient centricity truly means for our sector.
- Why it's so crucial for the industry to actively participate in this shift?
- Patient-centric initiatives that have already demonstrated a significant impact.
- Successful strategies and best practices for managing patient centricity in healthcare.
- How we can develop and execute effective strategies to improve patient engagement and the benefits this engagement brings to the drug development and discovery process.
- Evolving challenges and key considerations in the ethical and compliant use of relevant data, and the potential value of providing access to this data to all stakeholders.
- How we can maintain mutually beneficial ongoing partnerships between patients and the industry.
- Overcoming the challenges in making clinical trials and drug development more patient-centered.
- Setting expectations through collaborations
- Understanding the role of researchers in bridging communication gaps
- This congress also focuses on practical strategies for developing a powerful brand with the patient at its core.
WHO SHOULD ATTEND?
This Congress is beneficial to patients, pharmaceutical, biotech companies, researchers, physicians, patient advocacy groups, regulatory agencies, technology, and healthcare companies.
Network with Presidents, Heads/Chiefs, VPs, Directors, and Managers in the area of:
- Head of Patient Engagement
- Patient Services
- Engagement Strategy
- R&D Patient Engagement
- Medical Affairs
- Regulatory Affairs and Policy
- Patient Support and Patient Engagement
- RWE, and Data Management
- Quality and Compliance
- Clinical Development
- Programme Management
- Supply Chain Management
- Patient Access
- Clinical Research
- Global Head, Digital Accelerator
- Patient Engagement & Portfolio Strategy
- Patient Support Strategy & Insights
- Patient Experience
- Medical Affairs, Global Patient Advocacy & Alliances
- Government Policy and Advocacy
- Digital Patient Experience Lead
- Clinical Operations
- Clinical Insights and Experience
- Head of Strategy, Access Services
- Vice President, Site Collaborations and Patient Centricity
- Head of Neuroscience
- And much more...
Key Industry Expert Speakers 2026
Dr Liz Clarke
Visiting Lecturer and Patient Engagement Theme Lead
Centre for Pharmaceutical Medicines Research, Kings College London
Prof Guillaume Canaud
Head, Translational Medicine & Targeted Therapies Unit
Hôpital Necker Enfants Malades
Gunnar Schroefel
Senior Director Global Patient Advocacy and Head of the European Patient Advocacy Team
Daiichi Sankyo
Dr Sondra Butterworth
CEO & Founder
RareQoL (Rare Quality of Life) and EDIRA (Equality Diversity and Inclusive Research Association)
Schedule
Content Rich Program Agenda! Featuring Keynote Presentations, Stream Sessions, Panel, and Round Table Discussions.
TRENDS & STRATEGIES IN PATIENT CENTRICITY AND COLLABORATION
- What are the challenges and opportunities in shifting to patient-centric mindset within the organisation?
- How to build a patient-centric culture improving patient access and ensuring transfarency?
- How to meaningfully involve patients in the drug development process from early research to drug development and post market surveilance?
- Exploring the concept beyond lip service and into practical application
Moderator:
Panelists:
- Many biotech/pharmaceutical companies are talking about ”Patient Centricity”, but how can a company actually operate in a patient-centric way to create meaningful value?
- Learn best practices to transition from being product centered to patient centered
- Discuss strategies to embed patient centricity throughout your organization.
Gabor Purman, Patient Advocacy Director, Kyowa Kirin
- Patient Centricity requires new mindsets, relationships – and structures, company-wide. No stage of development, from discovery through delivery, gets a pass.
- No company function continues as before. Company culture changes, too.
- This isn’t easy but the results are worth the journey: to improve outcomesfor patients and business performance alike.
- If Patient Centricity is a fad, then it’s a failure.It should be the new way of doing business.
Dr Anthony Yanni, SVP and Global Head of Patient Centricity, Astellas Pharma*
- Advantages of forming forming strategic partnerships
- Addressing potential issues early in the development phase
- How will it optimize resource allocation and reduce development costs
- Implications for the patients who will ultimately use the medicines they manufacture.
Reserved
- Understanding complexities and addressing challenges faced by the industry in setting up end-to end supply chain for cell and gene therapies
- Best practices and lessons learnedthat guarantees effective manufacturing and deliveryof CGTs to the patients who needs them the most
- Robust technologies and innovative platformsthat connects therapieswith patients both in clinicaland commercial scale
- Understand where patientcentricity can advancethe interests sharedby industry and the patientcommunity Consider how focused goals and programs can strengthen research and development, commercialization and access
- Focus on opportunities to integrate patients,caregivers, consumers and advocates’ key concerns and insights into company plans and decision making
- Discuss applications of this targeted approachto your patientcentricity goals and programs
Reserved
Afternoon Stream Sessions
ACCESS & COLLABORATION
- Sharing insights into a live real-world example of this type of partnership
- Explaining the roles and responsibilities in achieving a positive outcome
- Providing key learning to the evolving process
- Supplying the audience with guiding principles for future partnerships
- Learning: Balancing health system priorities and resources to address patient community needs
- Creating policy to end disparities and open access to new regenerative and translational therapies.
- Increasing funding and technical support to CBOs for community outreach and education efforts.
- Across the spectrum of disease, from common to rare,patient data is becoming a critical driver of drug discovery, development, diagnosis,
commercialization and inclusive and equitable access to trials and treatments.
- Common barriers to access
- Strategies to address barriers to access
- Education of the process of clinical trials Listen to the Patient needs and help them to understand what the focus of the trial is.
- Understanding Pharmaceutical costs of trials and research
- Dealing with an illness with multiple organ involvement.
- Rare Disease
- The illusion of inclusion
- What transformation looks like
- The cost of exclusion
- Creating space for truth and trust
- Why this matters for you?
Daniel Newman, Patient Advocate, Trueheart
International
CLINICAL RESEARCH & TECHNOLOGY
- Reconsider terminology to reframe activity
- Prioritise engagement that leads to involvement and subsequent participation (listen-ask-invite)
- Shift thinking from ‘patient’ involvement to ‘potential participant’ involvement (PPIE becomes EIPP)
- Invest in ‘foresight’ as a valuable commodity
Lorna Allen, Senior Involvement Manager, Cystic Fibrosis Trust
- Patients and caregivers know best when it means improving the quality of life.
- Reality is much different than theory.
- Benefits of real-world experience inserted in basic science equals endpoints and outcomes that can be overlooked as unimportant.
- Across the spectrum of disease, from common to rare,patient data is becoming a critical driver of drug discovery, development, diagnosis,
commercialization and inclusive and equitable access to trials and treatments.
- Contributions that advocacy group scan make to clinical trial development
- The importance of knowing the people, their disease, and its burdens
- Successful collaborations are a win for all
- Streamlining recruitment, enrollment and retention
- Enhancing communication and engagement
- Improve data collection and management
- Why the vast majority of clinical trials run into
problems of recruiting participants - What you can do to solve these issues and improve
your overall recruitment strategy - This presenation will include a mix of case studies,
real world examples from different clinical trials and
provide specific to do’s to improve the patient
recruitment for your clinical trial.
Rasmus Hjorth, Patient Engagement Director, James
Lind Care
6:15 - 7:15 pm - NETWORKING DRINK RECEPTION
CHALLENGES & POTENTIALS OF PATIENT ENGAGEMENT
- Why is IDE important in clinical research
- Barriers to inclusion, diversity and equity
- Developing a cross-sector strategy and roadmap for greater access to and inclusion in clinical trials
- Strategies and best practices to improve IDE in clinical research
- Approach for measuring, collecting and reporting clinical trial diversity
Moderator:
Panelists:
- The WHY: diversity equity & inclusion, environmental social governance
- The WHAT: information & communication technologies (ICTs)
- The HOW: accessibility by design and shifting-left with universal design
Dr. Stephen Framil, Corporate Global Head of Accessibility, Merck & Co., INC
This resolution is not just symbolic. It provides a concrete, evidence-backed roadmap for engaging patients, people with lived experience, healthcare providers, and civil society in a structured, measurable, accountable and resourced way in health system design, delivery and decision-making. It is an opportunity to reshift focus
on the health outcomes that matter –too often health is done to people, not with people. And it’s an opportunity for the patient community to claim its space once and for all.
Amanda Bok, Chief Partnership Officer, The Synergist
- Why timing matters: Too early, too late, or just right?
- Striking the balance: Impact, ethics, and resources in tension
- Lessons learned so far: What real-world experience shows us
- Looking ahead: What needs to change for the future
Dr Liz Clark, Visiting Lecturer & Patient Engagement Theme Lead, King’s College London
- To Follow Shortly
Sumira Riaz, Patient Engagement/Health Psychologist Consultant, Founder, Unboxed Psychology
- The importance of data democratization
- Common challenges in clinical data review that hinders clinical trials Strategies in overcoming these challenges
- How to seamlessly integrate data from a variety of sources?
- How to improve safety review efficiencies and reduce the timeline to critical studies?
Reserved
- Learn about the latest technologies that can improve the efficiency and effectiveness of clinical trial design, addressing issues like increasing complexity
- Discover the principles and best practices for clinical trial design that can increase the likelihood of success, through a combination of literature analysis and practical experience
- Examine the challenges faced by patients during clinical trials and learn about potential solutions that can reduce the burden and increase the benefits for patients
Keith Berelowitz, Founder/CEO, pRxEngage Inc
- Putting the patient first achieves the best experience and outcome for that person and their family
- Improve communication from staff shift-changes in a hospital to getting the patient discharged faster
- Setting expectations soon
- Updating goals and outcomes; timely
Lara Bloom, President and CEO, The Ehlers-Danlos Society
- Key aspects of patient engagement initiatives
- Examples of patient engagement initiatives
- Benefits
Reserved
- Different interpretations of decision making across stakeholders
- Value on patient outcomes and engagement (case studies)
- Introduce the working model of decision making
Reserved
- Recognising key areas to ensure patients’ experiences, perspectives, needs, and priorities are captured and meaningfully incorporated into drug development and evaluation.
- Patient’s input to improve quality, relevance, safety and efficacy of drug development
- Challenges and opportunities for patient-centric product design
- The role of respective stakeholders and the way they interact, from the early steps of drug development to access in real life?
Moderator:
Panelists:
- Understanding the drivers for innovation in pharma
- Partnering with patients and placing patient well-being at the core of all initiatives
- Real-world data and patient-reported outcomes presents the power and the potential to redesign healthcare
- Innovative approaches for direct-to-patient assume significant importance for driving patient-centricity Technologies that enhance the patient-centricity in pharma
Moderator:
Panellist:
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Location
- Hilton London Kensington, London, United Kingdom
- info@paradigmglobalevents.com
- +44 (0) 207 193 3485